Monday, July 12, 2010


We had a family party Saturday. It was at Darrel's aunt and uncle's house, which is about ten minutes from here. I brought fish sticks for Frank's dinner, but nothing else, because I figured there'd be plenty of crackers or chips he'd be willing to eat. Well, I wasn't letting him eat potato chips- he's been having diarrhea again, and I think the oil in the chips makes it worse- but I thought there'd be enough other things he could eat that it wouldn't be an issue.

Well, it was an issue. Yes, they had Doritoes, but they didn't have the exact kind of Doritoes (Cool Ranch) that Darrel gets, so they looked different, so Frank wouldn't eat them. They had crackers but they weren't a kind Frank had ever eaten before, so he wouldn't eat them. They did have potato chips, but, again, I wasn't letting him eat those. I wanted to cry. Aunt had a box of Wheat Thins, so after Frank finished his fish sticks (comment from Aunt: "Oh, you're moving up in the world, Frank- eating more than just chicken nuggets now!"), I let him have all the Wheat Thins he wanted to have.

For dinner, they had burgers and dogs, mac and cheese, potato salad, etc- typical summer grill party type food. Frank doesn't eat any of those kinds of things. (Well, he couldn't eat potato salad or macaroni salad, because they have mayo in them, and mayo is made from eggs, which he's still allergic to.) There was another three-year-old there. not only was this kid fully potty trained, he played in the pool (which Frank doesn't like), and he ate whatever his parents put in front of him.

It's hard for me to decide what frustrates me the most- that my son won't eat many different types of foods, that he still is not nearly potty trained, that he doesn't want to do normal stuff like run through a sprinkler or play in a pool, fighting with insurance, or that I feel like I always have to make excuses for him to people who think we are entirely too permissive and let our kid run his life. I am starting to feel really drained by dealing with all this, and I feel sometimes like I just cannot handle it anymore. Darrel is getting so annoyed again about Frank's food issues, and I am unsure whether playing good cop/bad cop is a good thing, and will get Frank to try different things, or whether it is damaging to him. I'm just so confused and angry and frustrated- I was emotionally prepared for my kid to have lung problems, or immune problems, but never in my life did I even think there was a possibility he'd have a disorder that most of society has never heard of, and many who have heard of think it's BS.

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